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Freedom for HAE Patients



The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them

A non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies.

Countries outside the U.S. often have regulatory requirements or medical practices that differ from those in the U.S. and sites targeted at residents of those countries may have different or additional information than sites targeted at U.S. residents.  Therefore, the information contained in the sites you are about to enter may not be appropriate for use within the United States.

Health Care Professionals

Get Help With HAE

  • Third-party coverage
  • Product specific coverage
  • Therapy restrictions / limitations
  • Information on registering interest 
    in potential Jerini US sponsored 
    clinical trials
  • Prior Authorization / Statement of
    Medical Necessity (SMN)
  • Insurance forms
  • Insurance coding
  • Appeals of denied claims

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